Musings

2023 International LGMD Conference

The Speak Foundation’s International LGMD Conference was the reason I went to Washington, DC in the first place. It was my first time attending such an event. My disease is rare which makes getting together in person that much more meaningful. It was overwhelming in the best way. I left the conference more hopeful than afraid; knowing I wasn’t alone and that there *are* people and organizations out there thinking of us and prioritizing us. We just have to be patient and continue along our path of hope, which isn’t easy to do without having a community.

I ended up meeting so many lovely people, and knowing we’re all fighting the same fight is an incredible feeling and an instant bond I’ll always cherish. I don’t think I would’ve understood the power and importance of community if it weren’t for my disability. Community motivates and gives me strength. We don’t have to do things alone; no one can. I pray everyone can find their people in this lifetime.🧡

I had such a great time in DC. Hope to see y’all at the next conference! x


KaeComment